Faith & Mom had a good first night at CSH. We are still monitoring Faith’s O2 saturations as she sleeps as there is still some sleep apnea made worse by the pulmonary emboli (they make it harder to get oxygen into blood). Unfortunately Mom & Faith were woken many times by the alarm on the monitor and Faith had to put on a nasal cannula, which she hates.
She had a good day today with her first day of therapies; Recreational Therapy, Speech Therapy, Physical Therapy and Occupational Therapy. After dinner we gave her another good bath (her second one this month!). She was good and tired when we left her at 8PM, hopefully she gets another good night’s sleep.
A few people have asked about visiting. I will post her therapy schedule for next week so you can plan your visit around them. I will be with her during the day until around 4PM when Sue gets home and then return the next morning. Here is a link to CSH’s visiting information (http://www.childrens-specialized.org/For-Patients-Families/What-to-Expect/During-An-Inpatient-Stay.aspx) and directions (http://www.childrens-specialized.org/Locations/PSE-G-New-Brunswick.aspx) .
Bringing the real camera tomorrow so I can get some good pictures, no more cell phone shots.
Happy Easter to all, and to all a good night.