Just realized on the car ride home from NYC with Abbey that today is the 70^th day since that first night in the emergency room in March. For the majority of those days Faith has been heavily sedated or just not Faith. I MISS HER.

http://youtu.be/LVjtravV0jY

Plans for DAY 39

• They will continue to slowly wean ventilator assistance
• Continue dialysis
• I will stay home for the day with the other kids. Sue’s sister Karen and Mom will be with her all day. Karen is returning to California on Saturday.
• They added back one of her favorite sedatives and she seemed much more at peace today.
• Rest & Heal

Everyone asks, so what’s wrong with Faith. Here is the best explanation and chilling conclusion of I have seen to date written by her primary care doctor in the ICU (emphasis added by me).

Faith is an 8 y/o child with Down Syndrome who has spent most of the last 2 months in the PICU at our facility. She was originally admitted for severe obstructive sleep apnea that was complicated by acute respiratory distress syndrome following an emergent tonsillectomy done at an outside institution. She was transferred here for a higher level of specialized care and has subsequently developed numerous complications including extensive pulmonary emboli, septic shock, severe respiratory distress syndrome, and renal failure. She remains extremely ill on high ventilator support and dialysis. If she recovers from this illness it will require months of care and extensive rehabilitation to get her back to her prior condition.

We have been blessed to cross paths with many exceptional people in life, My answer as to why is below.

1 Corinthians 10:13 No temptation has overtaken you that is not common to man. God is faithful, and he will not let you be tempted beyond your ability, but with the temptation he will also provide the way of escape, that you may be able to endure it.