8 years ago I was elated to share this news with our friends and family:

Please join my family in welcoming Faith Teresa Moor to the world. She was born on November 2, 2003 at 11:14am and weighed 8lb 4oz and is 20 inches long. Continue reading →

We are still here the morning after.
Faith had an uneventful night and labs and numbers looking good this morning.

Hour by hour. More later.

Faith is currently critically stable.  She is super critical but for the moment stable.

What started out as a better day than the one before ended at 4:59 when they were preparing to suction her ET tube and she went into cardiac arrest.  They were all there ready to respond and although they did chest compressions for 5 minutes they believe her circulation and oxygenation.  Her followup blood work shows she “tolerated the cardiac arrest well” even what seems like a statement of madness gives us some hope.

No we nor they know the cause of these arrests. For the moment we live minute to minute, then hour to hour and God willing day-to-day.  Only time will tell.  I’m starting to worry that my little girl is losing her fight.

Sue and I are considering relocating the family closer for the next few days.  We will both not be home, the kids don’t want to be so far away. I cannot make another 100MPH dash back into the city in case of another event.  We will try to make a plan if clearer rested heads prevail in the morning.

At 5:01 PM today Faith experienced another cardiac arrest. They were able to resuscitate her after 5-6 minutes. She is currently critically stable.
This is not a good sign for her overall prognosis. Only the upcoming hours and God willing days
Will determine that.
Please do not call or text for details. I will update the blog as I can.

Today’s vocabulary word: labile adj: characterized by wide fluctuations (as in blood pressure or glucose tolerance) <labile hypertension>

Faith continues to make baby steps forward. They are having some difficulty regulating her blood pressure. For reasons unknown she swings from normal to hypertensive or hypotensive without a known trigger right now. The dialysis is pulling quite a bit of fluid off of her and it might be related to the emboli or the original infection.

• They have restarted one of the antibiotics she was on because changes in her white blood count might indicate sepsis again.
• They have fine tuned her sedation medications to hopefully help with her blood pressure.
• They have been reducing the ventilator support and Faith is tolerating it very well, for the first time in a while they haven’t been chasing her O2 saturation’s up and down.

When I arrived home tonight I found a card in the mailbox from Faith’s best friend Casey and a note from her mom (I’ve edited the very personal parts out).

Sue & Joe, I had to share with you – Casey’s birthday is 5/19 she is not having a birthday party this year…one reason, Faith would not be there…but I came home from work and she had made a card on her own for Faith (see below) – well I cried – she said all I want is for Faith to be healed & come home & be all better – I don’t need presents. So her “birthday” wish & prayer is for Faith this year! Your daughter touched Casey’s heart from day 1 – when they met! She has always adored her (as I). I will never give up hope or prayers on Faith – she is a gift from God & her purpose is not done! I am so sorry for all your going thru bu now I have called in every resource possible for prayer!

Casey, Faith will get your card tomorrow morning. It will be proudly displayed in her room. You have so brightened my day and renewed my hope and faith in all that is good. I hope you have a wonderful birthday tomorrow and cannot wait till next years so Faith can celebrate it with you! You are such a true friend to Faith.